demain 15 fevrier sera la journée du angelman syndrome
une journée pour faire connaitre la maladie et recolté des fonds.
[Vous devez être inscrit et connecté pour voir ce lien]colin , devenu porte parole de la cause a laissé un petit message sur le site officle du fast.
"I'd like to take this opportunity to thank all those who will play their part in International Awareness Day on February 15th. It's a really beautiful thing to mark this day as a celebration of our children and all they have achieved and as an opportunity to introduce more people to both the beauty inherent in and the trials faced by those with AS.
Anything anyone can do to raise awareness is greatly appreciated. No gesture too small. No such thing as the insignificant word or deed. I wish all the hardworking folks at FAST all the best with the endeavor and all the hard working and hard loving parents around the world a collectively successful and unified day".
-Colin Farrell